Congress Passes Childhood STAR Act.

After years of advocacy, Congress finally passed the Childhood Cancer Survivorship Treatment Access and Research (STAR) Act. This is one of the most comprehensive childhood cancer bills ever introduced to Congress, and will advance pediatric cancer research and address the ongoing needs of survivors. Making Headway is so proud to have been part of the successful advocacy team and are grateful to all the families who made this possible.

Just a few weeks ago, Making Headway Foundation sponsored families that we work with to be part of “Head to the Hill”, a day to advocate for brain tumor research and programs on Capitol Hill. Four Making Headway families, each impacted by a childhood brain tumor, told their story at the offices of Senators Chuck Schumer, Kirsten Gillibrand, Richard Blumenthal, and Chris Murphy, as well as eight members of the House of Representatives. Making Headway is so proud of these families, each who was able to connect with public officials in a way that even the best paid lobbyist could only dream of.

Raymour & Flanigan has chosen to honor and support Making Headway at a fun, family event this weekend in North Brunswick, NJ. They are hosting a free afternoon of activities, kid’s yoga, face-painting, a photo booth, and more to support our mission. Everyone is invited to come and enjoy the fun.
– Sunday, April 21st, 1pm-6pm.
– Raymour & Flanigan, 1471 US Route 1 South, North Brunswick, NJ 08902.

 

2018 Spring Show – Airplay

On Sunday April 8, hundreds of families attended a special Broadway Show at the New Victory Theater. One of the many ways that Making Headway works with families is through annual events, like our spring Broadway Show (now in its 22nd year). Each family who attended has a child diagnosed with a brain or spinal cord tumor. Each family has endured unimaginable pain and hardship; yet on this day the theater is filled with smiles, hugs, and the joy of laughing children. They all share a common bond and experience, which creates a unique feeling that only “family” can provide.

Event pictures here.

Congress approve largest U.S. research spending increase in a decade

From www.sciencemag.org

It took an extra 6 months, but Congress has finally completed its work on a spending plan for the 2018 fiscal year, which began last October. And the delay was good news for many federal science agencies.  President Donald Trump today signed into law a $1.3 trillion spending package that largely rejects deep cuts to research agencies proposed by the White House and, in many cases, provides substantial increases. When it comes to federal research spending, there are “some silly good numbers in here,” tweeted Matt Hourihan, who analyzes U.S. science spending patterns for AAAS (publisher of ScienceInsider) in Washington, D.C., when the deal was released this past Wednesday.

The increases were made possible, in large part, by an agreement reached earlier this year to raise mandatory caps on civilian and military spending that gave lawmakers an additional $300 billion to spend this year and next.

Here’s a look at some of the top line numbers for key science agencies:

  • The National Institutes of Health (NIH) in Bethesda, Maryland, receives a $3 billion, 8.3% increase to $37 billion. That is well above the increase proposed by either the House of Representatives or the Senate in their versions of the spending bills, and a blunt rejection of the 22% cut proposed by the White House. Included is an additional $414 million for Alzheimer’s disease research, for a total of $1.8 billion, and a $27 million boost, to $543 million, for clinical and translational science funding. The NIH increase is “beyond words, folks,” tweeted Benjamin Corb, director of public affairs at the American Society for Biochemistry and Molecular Biology in Rockville, Maryland.
  • The National Science Foundation in Alexandria, Virginia, would get $7.8 billion, a 3.9% or $295 million increase. The agency’s research account would grow by about 5%, to $6.3 billion. The bill notes “this strong investment in basic research reflects the Congress’ growing concern that China and other competitors are outpacing the United States in terms of research spending.” It also endorses the Senate’s call to build three new oceanographic research vessels.
  • The Department of Energy’s Office of Science in Washington, D.C., would receive $6.26 billion, an $868 million increase. That is roughly a 15% increase, rather than the 15% cut the White House proposed. Lawmakers also rejected Trump’s proposal to eliminate the Advanced Research Projects Agency-Energy, and instead gave it a $47 million boost, to $353 million.
  • A $457 million, 7.9% increase for NASA science programs, to $6.2 billion. The bill increases the agency’s planetary science program by some 21%, or $382 million, to $2.2 billion. NASA’s earth science programs remain flat at 2017 levels, but the bill rejects the proposed elimination of several earth science missions and maintains funding for the troubled Wide Field Infrared Survey Telescope. Overall, NASA gets $20.7 billion, $1.1 billion above 2017.
  • Spending at the National Oceanic and Atmospheric Administration in Silver Spring, Maryland, would grow by $234 million, to $5.9 billion overall. Funding for climate research would remain flat, but the final bill rejects cuts proposed by Trump and the House.
  • The National Institute of Standards and Technology ​in Gaithersburg, Maryland, would get $1.2 billion, $247 million above 2017 levels.
  • The U.S. Geological Survey in Reston, Virginia, gets $1.1 billion, $63 million above 2017 levels. The bill preserves the agency’s eight climate science centers; the White House had proposed cutting that number in half.
  • Research programs at the U.S. Department of Agriculture in Washington, D.C., would grow by $33 million, to $1.2 billion.
  • The budget of the Environmental Protection Agency ​in Washington, D.C., remains flat at $8.1 billion, as lawmakers rejected deep proposed cuts.

Making Headway Winter Newsletter

The Making Headway’s Winter Newsletter is here.

– Scholarship Winners, Making Headway Expands Educational Services, New Grants Funded by Making Headway, Fellowship Alumni Update, Events and Activities, Broadway Show for Families, Real Families, Real Impact, and so much more…

 

Facts about Childhood CNS Tumors

Today, there are more than 28,000 children (ages 0-19) living with brain or spinal cord tumors, commonly referred to as Central Nervous System (CNS) tumors. Over 2,500 children are diagnosed every year (seven every day). Their lives are changed forever. Treatments for pediatric CNS tumors are limited and they cause more deaths than any other type of pediatric cancer.  The Making Headway Foundation works to help these children, and their families through a variety of programs, services, and research.  Learn more at http://makingheadway.org/facts/.

Student Athletes Raises Funds for Cancer Research, Let’s Help

Millennials have been called many things, but they aren’t often acknowledged for their consistent and generous support for charities. This passion to give back is exemplified in the upcoming 4th Annual Greeley All-Athlete Walkathon.  More than a dozen local athletic teams are coming together to support Making Headway and Pediatric/Adolescent cancer research and programs that assist these children and their families.   Help support their effort by attending the event or donating to the cause.  To donate or learn more, visit https://chuffed.org/project/greeley. #giving

Download Flyer Here

Training the next generation of doctors

Making Headway Foundation understands that in order for children to receive the highest quality medical services, doctors must be specially trained to understand the unique issues of pediatric brain and spinal cord tumor patients. Making Headway is helping to meet this need through the funding of our annual Pediatric Neuro-oncology Fellowship Program. Chosen from among the best doctors in the country, fellows evaluate and treat children with a broad range of brain or spinal cord tumors.  Now in its seventh year, the Making Headway Fellowship Program has been a great success; each fellow has moved forward with a robust career in pediatric neuro-oncology.

Fairytale Yoga – Making Headway Program Highlight

Over the years, Making Headway has developed a variety of unique and creative programs to help children who have been diagnosed with a brain or spinal cord tumor.  Fairytale Yoga is a one-of-a-kind program designed specifically for children impacted by chemotherapy. Through this program, our instructor, Annie Hickman is able to bring a special joy to children and their families (as well as the doctors and nurses).  The children love to explore playful movements with their bodies. Children run in circles, dance with silk butterfly wings, play yoga games, and make music with Tibetan singing bowls. Fairytale yoga helps transform an environment that is often filled with fear and uncertainty, into a place of hope and love.  Bringing these types of programs to families impacted by pediatric cancer is a core part of the Making Headway Foundation.

September is National Childhood Cancer Awareness Month

September is recognized as National Childhood Cancer Awareness Month, but Making Headway knows that Childhood Cancer impacts families every day of the year. Over 15,000 children are diagnosed with cancer every year; approximately 1/4 of them will not survive the disease. Making Headway’s mission focuses on the most common and dangerous type of cancer, pediatric brain and spinal cord tumors.

Childhood cancer may seem like an overwhelming topic, but if we really want to make a difference, we all need to help. There are so many ways that you can help children with cancer.

* Make a Contribution: 90% of the funds that support Making Headway comes from individuals like you. These donations support all of our programs that assist children with a brain or spinal cord tumor. Make a donation today in honor of Childhood Cancer Awareness month.

* Volunteer:  Service providers and hospitals are always looking for dedicated volunteers to help in a variety of capacities. To find your opportunity, search for a local service organization, hospital, or contact Making Headway at 914-238-8384.

* Advocate: Making Headway is working with local and national organizations to advocate for additional funding for medical research and a system to better assist children and families. Learn how you can help.

* Spread the Word: Forward this page to your family, friends, and co-workers. We all have to get involved to provide Care, Comfort, and a Cure for families impacted by pediatric brain and spinal cord tumors.