Making Headway Winter Newsletter

The Making Headway’s Winter Newsletter is here.

– Scholarship Winners, Making Headway Expands Educational Services, New Grants Funded by Making Headway, Fellowship Alumni Update, Events and Activities, Broadway Show for Families, Real Families, Real Impact, and so much more…

 

Facts about Childhood CNS Tumors

Today, there are more than 28,000 children (ages 0-19) living with brain or spinal cord tumors, commonly referred to as Central Nervous System (CNS) tumors. Over 2,500 children are diagnosed every year (seven every day). Their lives are changed forever. Treatments for pediatric CNS tumors are limited and they cause more deaths than any other type of pediatric cancer.  The Making Headway Foundation works to help these children, and their families through a variety of programs, services, and research.  Learn more at http://makingheadway.org/facts/.

Student Athletes Raises Funds for Cancer Research, Let’s Help

Millennials have been called many things, but they aren’t often acknowledged for their consistent and generous support for charities. This passion to give back is exemplified in the upcoming 4th Annual Greeley All-Athlete Walkathon.  More than a dozen local athletic teams are coming together to support Making Headway and Pediatric/Adolescent cancer research and programs that assist these children and their families.   Help support their effort by attending the event or donating to the cause.  To donate or learn more, visit https://chuffed.org/project/greeley. #giving

Download Flyer Here

Training the next generation of doctors

Making Headway Foundation understands that in order for children to receive the highest quality medical services, doctors must be specially trained to understand the unique issues of pediatric brain and spinal cord tumor patients. Making Headway is helping to meet this need through the funding of our annual Pediatric Neuro-oncology Fellowship Program. Chosen from among the best doctors in the country, fellows evaluate and treat children with a broad range of brain or spinal cord tumors.  Now in its seventh year, the Making Headway Fellowship Program has been a great success; each fellow has moved forward with a robust career in pediatric neuro-oncology.

Fairytale Yoga – Making Headway Program Highlight

Over the years, Making Headway has developed a variety of unique and creative programs to help children who have been diagnosed with a brain or spinal cord tumor.  Fairytale Yoga is a one-of-a-kind program designed specifically for children impacted by chemotherapy. Through this program, our instructor, Annie Hickman is able to bring a special joy to children and their families (as well as the doctors and nurses).  The children love to explore playful movements with their bodies. Children run in circles, dance with silk butterfly wings, play yoga games, and make music with Tibetan singing bowls. Fairytale yoga helps transform an environment that is often filled with fear and uncertainty, into a place of hope and love.  Bringing these types of programs to families impacted by pediatric cancer is a core part of the Making Headway Foundation.

September is National Childhood Cancer Awareness Month

September is recognized as National Childhood Cancer Awareness Month, but Making Headway knows that Childhood Cancer impacts families every day of the year. Over 15,000 children are diagnosed with cancer every year; approximately 1/4 of them will not survive the disease. Making Headway’s mission focuses on the most common and dangerous type of cancer, pediatric brain and spinal cord tumors.

Childhood cancer may seem like an overwhelming topic, but if we really want to make a difference, we all need to help. There are so many ways that you can help children with cancer.

* Make a Contribution: 90% of the funds that support Making Headway comes from individuals like you. These donations support all of our programs that assist children with a brain or spinal cord tumor. Make a donation today in honor of Childhood Cancer Awareness month.

* Volunteer:  Service providers and hospitals are always looking for dedicated volunteers to help in a variety of capacities. To find your opportunity, search for a local service organization, hospital, or contact Making Headway at 914-238-8384.

* Advocate: Making Headway is working with local and national organizations to advocate for additional funding for medical research and a system to better assist children and families. Learn how you can help.

* Spread the Word: Forward this page to your family, friends, and co-workers. We all have to get involved to provide Care, Comfort, and a Cure for families impacted by pediatric brain and spinal cord tumors.

Pediatric Low-Grade Gliomas Research Study Published

Making Headway funds a variety of research studies to help identify better treatments and a cure for pediatric brain or spinal cord tumors. Several years ago, Making Headway helped fund a project led by Dr. Uri Tabori, at the Hospital for Sick Children in Toronto. This study seeks to understand the implications of a specific gene, BRAF V600E, in Pediatric Low-Grade Gliomas.  Although the paper is quite technical, it showcases both the tremendous complexity of understanding pediatric brain tumors and the significant advancements that researchers are making.  Making Headway is proud to help move this science forward by funding innovative and practical research projects.  You can download a copy of the report at http://makingheadway.org/published.  You can support future projects, by donating to Making Headway.

Why clinical trials are so important

The treatment options for pediatric brain tumors are very limited. New options are desperately needed to improve survival rates and quality of life. Before a new treatment can be approved it must go through a large number of tests and analysis. Clinical Trials are a critical step in which the new treatment option is tested on patients. Making Headway understands the critical role that clinical trials play in new discoveries, and currently funds a Research Manager to organize and manage these trials at the Stephen D. Hassenfeld Children’s Center for Cancer and Blood Disorders. This past year, the Clinical Research Manager oversaw 35 active research projects that are devoted specifically to pediatric brain or spinal cord tumors. Each trial has the potential to discover a new treatment or possibly a cure for these pediatric tumors.

Fast Facts – What is a pediatric CNS tumor?

Together, the brain and spinal cord make up the central nervous system (CNS). A childhood CNS tumor is a disease in which abnormal cells form in the tissues of the brain or spinal cord. There are dozens of different childhood brain tumor types and classifications, each based upon a tumor’s cell structure, composition, rate of growth and other characteristics.  Learn more at http://makingheadway.org/facts/.

Program Highlight – Playroom Improvements

A hospital can be a scary place for a child, especially for pediatric cancer patients. Recent studies have proven what Making Headway has known for decades: the hospital’s physical environment affects the patients’ experiences, emotional needs, and health outcomes.  Every child at the Hassenfeld Children’s Center is able to benefit from the enhanced playroom and activities supported by Making Headway. Through our programs, Making Headway has transformed the halls and the playroom into a fun, healthy place for children and families. On any given day, children of all ages and backgrounds can be found happily absorbed in arts and crafts activities, games, or munching on healthy, delicious snacks. Professional entertainers and child therapists are also part of the playroom team, helping the whole family feel comfortable, relaxed and welcome.