Christmas Eve Reflections

In listening to the score of my favorite movie, you may be surprised to know that the song I love the most is not the title Song, White Christmas.  It is the song that Bing Crosby sings to Rosemary Clooney.  “If you’re worried and you can’t sleep, just count your blessings instead of sheep, and you’ll fall asleep counting your blessings.”  Such a perfect sentiment over the holidays, don’t you think?

New law in NY regarding scalping tickets to charity events?

There is a new bill being proposed in NY that may prevent ticket scalpers from selling tickets to charity benefits at grossly inflated prices.  (See stories about the 12.12.12 concert).  

What do you think of the proposed law?

Of the scalping practice?

We’ll pass on your comments to our connections in the fundraising field.

NYU Update on re-opening


Dear Friends,

I am thrilled to report that we are moving forward with a phased re-opening of NYU Langone, with Tisch Hospital starting before the end of the year. Our goal of having nearly all of our main campus services back up and running by the end of January 2013 remains on track

Last week, we reached two significant milestones in our recovery efforts: the delivery of a mobile kitchen to ensure that food and nutrition services will be available for our patients, and the installation of a mobile MRI, a critical component to the re-opening of our inpatient services. Locating a unit in a short amount of time, in addition to finding a new and safe location capable of supporting the unit’s weight, was no small feat, but this puzzle became another opportunity for our faculty and staff to demonstrate the teamwork and creative thinking that has become a frequent sight at NYU Langone.

While positive progress in our patient care areas continues, the Office of Science and Research (OSR) is also expanding its efforts to help our research community. Principal investigators have a new support team of faculty advisors and staff from OSR to help them provide a clear and accurate picture to all program officers at the NIH, as well as to officials from other organizations, of the significant toll Sandy took on our research efforts and how we are quickly moving towards a full recovery.

As you can see, we have overcome many challenges over the past few weeks. And while many still lie ahead, I know the faculty and staff at NYU Langone will continue to rise to the occasion so we can get back to doing what we do best—providing world-class patient care, conducting groundbreaking research, and educating the next generation of physicians. Thank you for your continued support.

Best regards,

Robert I. Grossman, MD, Hon ’08
Saul J. Farber Dean and CEO
NYU Langone Medical Center

The Mark of Zorro – February 10


Making Headway invites you to an afternoon of high-speed horse chases, rooftop battles and forbidden romance. Watch as a magnetic trio of actors brings the legendary Zorro to life, swinging his way to justice in the perfect adventure for your young heroes.

En Garde! If you cannot attend, please consider a donation so that we may invite patient families.

Online donations or ticket orders


Thank you Chappaqua Rotary

Catherine Lepone of Making Headway Foundation

It was my pleasure to speak at the Chappaqua Rotary yesterday about the work of Making Headway Foundation.  Everyone was so gracious and attentive to our story.  We are excited to have new friends from our hamlet of Chappaqua.

Thank you to Ann Herrero of Edward Jones for inviting me to make a presentation to her fellow Rotarians.  We met through the Chappaqua Millwood Chamber of Commerce.



We appreciate your support

Making Headway Foundation improves the quality of life and healing of children suffering from brain and spinal cord tumors.  We do this by enhancing medical treatment with caring patient support programs and by funding scientific research geared toward better treatments and cure.

We help children and families in the New York, New Jersey and Connecticut regions.  We also fund scientific research for better treatments and a cure.


One Family’s Experience Becomes a Gift for Many

The Gala Invitation

How do you honor the memory of Holly Lind, a mother, wife and friend who passed away at the age of 33? By bringing hundreds of people together in support of a cause she cared about deeply: Making Headway Foundation. This past summer’s Holly’s Angels Gala was the largest fundraiser in Making Headway history. The 750 guests who showed up to honor Holly, her family and the many children she met at the Hassenfeld Children’s Center—the children she dubbed her “angels”—together raised more than $1.5 million. The fundraiser was the result of a joint effort. For a speaker, Making Headway reached out to its longtime friend and supporter, President Bill Clinton, while Holly’s husband, Keith, reached out to friends, acquaintances and business associates for an audience. President Clinton wasted no time in saying he’d be delighted to make an appearance; the hard part was finding a date and location that worked with his busy schedule.

Once that was settled, it was just a matter of details. Making Headway supporter, Louis Konstantinos Vellios, of Konstantinos Floral Design, donated his genius for décor to create a custom environment at Cipriani’s 42nd Street location. A special dinner committee worked with the Cipriani staff to add distinctive lighting and choose the perfect menu. An Evening of Memories, Laughter and Inspiration The gala was held on the evening of Tuesday, June 26. Celebrity sportscaster Erin Andrews was the emcee, and comedian Seth Meyers lightened the evening with his gentle brand of humor. Keith Lind spoke movingly about Holly, who had been his high school sweetheart, while Making Headway president, Edward Manley, and medical advisor, Dr. Jeffrey Allen, each took a turn to speak about the Foundation’s work.

But not surprisingly, it was President Bill Clinton who brought down the house. President Clinton used his time not just to focus on one of his favorite topics, grassroots philanthropy, but to give his own personal account of knowing the Manleys and express his admiration for Making Headway’s work.

After that, it was time for another first, as Keith Lind returned to the stage with an impassioned appeal for participants to donate again right then and there—through their cell phones. The response not only set a record for Making Headway, which has never done text-based fundraising before, but broke the record of Text to Pledge, the company processing the donations.

All in all, it was a wonderful night, in which the children who had so inspired Holly Lind became an inspiration for us all.

A Message from Catherine Lepone, Director of Development,
Making Headway Foundation

Making Headway

About Making Headway Foundation
When a child is diagnosed with a brain or spinal cord tumor, the future is uncertain; families struggle with anxiety and fear. A strong medical team can help the family take its first crucial steps forward. But reconstructing a life and nurturing a family devastated by the emotional and physical demands of treatment and its aftermath go beyond what a medical environment can provide. The whole family needs a special kind of care and support.

How It Began
Making Headway Foundation was established in 1996 by a small group of parents—Maya and Edward Manley and Clint Greenbaum—whose own children had undergone treatment for brain tumors. They found that traditional hospital-based medical programs failed to provide essential humanistic services that enabled a child to reintegrate physically and emotionally with his or her family, school and peer groups. The founders of Making Headway wished to provide other families with what they had found wanting—even with the finest medical care. Thus began a close collaboration with the Hyman-Newman Institute for Neurology and Neurosurgery (INN) at Beth Israel Medical Center in New York City. From the start, Making Headway was conceived as having three main components: