Turn the White House Gold??
CLICK THE IMAGE TO GO TO THE SURVEY
Here is a petition to light the White House for Pediatric Cancer Awareness Month (September). Sounds like a great way to shed light on the cause (pun intended).
Making Headway Named Merchant of the Week
Special thanks to Rob Greenstein and the Chappaqua Millwood Chamber of Commerce as well as New Castle NOW for featuring Making Headway Foundation as the Merchant of the Week!
http://www.newcastlenow.org/index.php/article/new_merchant_of_the_week_making_headway_foundation
Talking to children about having a brain tumor
Here is some good advice on how to talk to children about having a brain tumor. Thank you to St. Jude Children’s Research Hospital for this. Just click the image to go to the article.
Click the image for a link to the article.
Thesis Student Looking For Patient Families
Making Headway has offered to post the following information for a grad student in Connecticut:
FAMILY NEEDED TO PARTICIPATE IN THESIS STUDY EXPLORING
HOW CHILDHOOD CANCER AFFECTS FAMILY STRUCTURE
My name is Heather, and I am a graduate student enrolled in Southern Connecticut State University’s Masters of Social Work Program. I am looking for a family to participate in my research study on how experiencing childhood cancer affects families.
PURPOSE: The purpose of the research study is to explore the perceptions of each member of a family on how the experience of childhood cancer affects family functioning.
PARTICIPATION: Participation is voluntary. Each participating family member will be interviewed individually, and will be asked to answer a series of interview questions related to what family life was like before the diagnosis, and after surviving the experience, of childhood cancer. Participants have the option of phone interviews, video-chat interviews using Skype, and or in-person interviews (depending on geographical location).
ELIGIBILITY: For the purposes of this research study the family needs to:
- Have experienced childhood cancer in at least one child member of the family
- Be in survivor status for at least three years since remission status
- Include two parents or partners
- Be intact (parents have not been divorced and siblings have not been separated due to divorce)
- Include at least one sibling younger than the child-patient
- The child-patient should be 8 years of age or older
- The youngest sibling should be no younger than 6 years of age
- To be able to read, speak, and fully understand the English language, as it is the language the investigator will use.
WHEN: The study will take place between December 15th 2012 and February 17th 2013
CONTACT: For more information on this study, or to volunteer for participation, please contact:
Heather, MSW Student
Southern Connecticut State University
Cell Phone: (203) 927-7364
Email: heatherfamilystudy@gmail.com
Catherine Lepone promoted to Executive Director
From Making Headway Foundation President Edward P. Manley
I am pleased to announce the appointment of Catherine Lepone as Executive Director of the Making Headway Foundation, effective January 1, 2013.
Catherine served as a consultant to Making Headway beginning June 6, 2011, focusing on development activities and event management. She was appointed Director of Development effective January 1, 2012. During the past year, she has organized and managed four new events: the highly successful “Holly’s Angels” Gala in June, as well as a golf tournament, a memorial walk and a bowling party.
This year, Catherine will continue to be responsible for all development activities and event management. She will also assist the President by becoming familiar with and participating in the review of grant applications and the Ongoing Care Program’s psychological and educational consulting activities.
Catherine graduated cum laude from the State University of New York with a BS degree in business administration, and has had 20 years experience in various positions in the non-profit field.
Christmas Eve Reflections
In listening to the score of my favorite movie, you may be surprised to know that the song I love the most is not the title Song, White Christmas. It is the song that Bing Crosby sings to Rosemary Clooney. “If you’re worried and you can’t sleep, just count your blessings instead of sheep, and you’ll fall asleep counting your blessings.” Such a perfect sentiment over the holidays, don’t you think?
New law in NY regarding scalping tickets to charity events?
There is a new bill being proposed in NY that may prevent ticket scalpers from selling tickets to charity benefits at grossly inflated prices. (See stories about the 12.12.12 concert).
What do you think of the proposed law?
Of the scalping practice?
We’ll pass on your comments to our connections in the fundraising field.
NYU Update on re-opening
MAKING HEADWAY FOUNDATION JUST RECEIVED THE FOLLOWING EMAIL FROM DR. GROSSMAN OF NYU:
Dear Friends,
I am thrilled to report that we are moving forward with a phased re-opening of NYU Langone, with Tisch Hospital starting before the end of the year. Our goal of having nearly all of our main campus services back up and running by the end of January 2013 remains on track
Last week, we reached two significant milestones in our recovery efforts: the delivery of a mobile kitchen to ensure that food and nutrition services will be available for our patients, and the installation of a mobile MRI, a critical component to the re-opening of our inpatient services. Locating a unit in a short amount of time, in addition to finding a new and safe location capable of supporting the unit’s weight, was no small feat, but this puzzle became another opportunity for our faculty and staff to demonstrate the teamwork and creative thinking that has become a frequent sight at NYU Langone.
While positive progress in our patient care areas continues, the Office of Science and Research (OSR) is also expanding its efforts to help our research community. Principal investigators have a new support team of faculty advisors and staff from OSR to help them provide a clear and accurate picture to all program officers at the NIH, as well as to officials from other organizations, of the significant toll Sandy took on our research efforts and how we are quickly moving towards a full recovery.
As you can see, we have overcome many challenges over the past few weeks. And while many still lie ahead, I know the faculty and staff at NYU Langone will continue to rise to the occasion so we can get back to doing what we do best—providing world-class patient care, conducting groundbreaking research, and educating the next generation of physicians. Thank you for your continued support.
Best regards,
Robert I. Grossman, MD, Hon ’08
Saul J. Farber Dean and CEO
NYU Langone Medical Center
The Mark of Zorro – February 10
ANNUAL FUNDRAISER AND FAMILY OUTING
Making Headway invites you to an afternoon of high-speed horse chases, rooftop battles and forbidden romance. Watch as a magnetic trio of actors brings the legendary Zorro to life, swinging his way to justice in the perfect adventure for your young heroes.
En Garde! If you cannot attend, please consider a donation so that we may invite patient families.
Online donations or ticket orders https://
Thank you Chappaqua Rotary
Catherine Lepone of Making Headway Foundation
It was my pleasure to speak at the Chappaqua Rotary yesterday about the work of Making Headway Foundation. Everyone was so gracious and attentive to our story. We are excited to have new friends from our hamlet of Chappaqua.
Thank you to Ann Herrero of Edward Jones for inviting me to make a presentation to her fellow Rotarians. We met through the Chappaqua Millwood Chamber of Commerce.
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